“To be fair, for at least year and a half I was peeing blood, so I was nineteen when it all started. I was too scared to go and see the doctor.”
Hi, my name is Otis and I’m 22. I like women, beer and going out with my mates. I like going to the gym here and there and stuff. I’m just an ordinary lad who likes the odd drink and a fun life.
To be fair, for at least year and a half I was peeing blood, so I was nineteen when it all started. I was too scared to go and see the doctor. I knew something was up but I just pushed it to the back of my mind. My mate though kept on my case and persuaded me to see my GP. The doctor said I should have gone in to see him earlier. He was great and put me at ease. He booked me straight in for a cystoscopy and four days later they found the tumour. It all went a bit quick. That was about ten months ago.
I’ve got Grade 3 Ta, so although it’s small it’s very aggressive.
I’m on my third week of my BCG treatment, although they had told me I might have to have an unlicensed version of the drug from India because of the current BCG shortage. At the minute they have supplies in my hospital but I know I’m one of the lucky ones. The treatments make me feel a bit dodgy the following day, but other than that it’s not too bad. I have another few weeks to go on the treatments and then I’m having another cystoscopy to see how they’re working.
It has changed everything, especially with work. I can’t really work at the moment. I’m a self employed builder specialising in insulation, rendering and stuff like that, so it’s heavy lifting all day long. After a TURBT procedure I’m not allowed to lift anything heavy for six weeks, so I’m doing odd days here and there between treatments. I really wish I had a different job now! I am hoping to get to work a bit more in the spring.
I’m in the really early stages of diagnosis and treatment and I keep thinking what could have happened if my mate hadn’t nagged me to go to my doctor. Because my cancer is aggressive they told me I had two options, BCG or having my bladder removed. I don’t really want to have my bladder out because then I can’t have kids and that naturally. I really want to have kids so that made the choice for me. My family are more worried than me. Sometimes I think that I have to make them feel a bit more comfortable about the situation. It’s hard to see the people I care about upset.
It’ll help. I wanted to let young people know, by telling my story, that they can get it an all. I also thought it would be good for me to be around people going through the same thing.
Yeah, defo, one hundred percent. I just look at it as an inconvenience. I want to get on with my life.
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